"In the fertility world, all rights go to the donor and the receiver, and none to the child that is created, even when done with the best intentions. I do not have the right to my own healthcare information, and critical details about my donor sit collecting dust in a storage facility."
At Advocate Genetics, we believe there is a sea change happening in gamete and embryo donation. . . and we are fortunate to be emerging into a new era of awareness on the impacts that these family decisions have upon generations to come. We believe that the more these issues are discussed early on in the process of working with donors and recipients, the more we improve the long-term outcomes for the families we are helping to create!
Shout out to this great little video on pronouns put out by the gender-diverse folks at Minus18!
Epigenetics in donor pregnancies? We get this question all the time at Advocate Genetics! Check out our blog post and feel free to share with your clients who have questions about this important topic.
And keep in mind that this is one of the things we often explore during our match consultations for recipients of egg, sperm, and embryo donation. These consultations are designed for intended parents to explain any genetic risks identified with the donor consultation, to review other risks and testing options in pregnancy, and to consider the potential implications of new genetic testing options in their child's life in the future. Patients often benefit from these consultations for informed consent prior to a cycle with a gamete donor.
The Experience of Having Remaining Embryos: In this live 90-minute webinar, the EM•POWER team will focus on the experience of having remaining embryos after IVF and how to make a decision that feels right for each person/family. It's a great resource for both patients and providers!
Becoming a Parent Via Embryo Donation: In this live webinar, the EM•POWER team explores the recipient's experience in embryo donation, from navigating the emotional journey as patients consider their options for fertility treatment to important considerations when considering how they might match with a donor or donors.
Talking to Children About Embryo Donation: In this live webinar, the EM•POWER team explores different ways to talk with children about embryo donation. We share tools and tips from our family experiences and discuss ways to support children as they shape their own unique narratives.
Getting your genome sequenced costs about as much as a new iPhone and generates approximately 200GB of data (that would take up more storage than most iPhones have!). But... what do we do with 200GB of human genome data? Eric Green discusses the future of human genomics in this thought-provoking article.
If you or your patient has a genetic result that has you scratching your head, remember that genetic counselors are here to help!
Is PGT-A worth it? What are some risk factors for chromosomal disorders? What should I do with my mosaic embryos? We're here to help! We have a team of board-certified genetic counselors who are committed to providing tailored genetic counseling specifically for patients who are seeking fertility treatment!
How have direct-to-consumer genetic tests and social media impacted gamete donor anonymity? Advocate Genetics founder, Gina Davis, speaks about how donor anonymity has been changing through the years on this episode of the ASRM Today podcast.
How do egg donors feel about sharing their family history with a genetic counselor? Of course, family history is an incredible gift for a future child's permanent health history, and reviewing a donor family tree with a genetic counselor can help shape the family history and genetic test results into a useful tool for a child conceived in a donor cycle. But we also know that this appointment may seem intimidating to egg donor candidates and we spend a lot of time thinking about how to best help integrate this important session so that it is informative, thoughtful, empathic, and straightforward for egg donor candidates. We've been asking the egg donors who come to Advocate Genetics for their genetic screening appointment, and here is what they say.
Representation matters! Shout out to Bless This Mess creators for featuring diverse family forms in authentic character development! Nicole Richie has a cameo in this show and her character and her back-story is simply adorable.